65kms for Cystic Fibrosis

I had never heard of ‘Cystic Fibrosis’ when a nurse told me that my perfect two-week-old daughter, Skyla, would have to endure the life-shortening chronic illness that affects all her major organs including the lungs and the digestive system.

– Rachael

One in 10 children with cystic fibrosis are diagnosed shortly after birth. This is due to a condition called meconium ileus, where – in some cases – the gut becomes blocked with meconium – a thick, dark, sticky substance, which is made by the baby’s gut before being born. Urgent surgery can be needed to relieve the blockage

This was the scenario for Skyla: At just two days old she started vomiting and her stomach was distended, so she was rushed to the Mater children’s Hospital for urgent observation. Luckily, Skyla did not require surgery, but instead received many bowel flush outs. Initially, the doctors were unsure if the symptoms were related to Cystic Fibrosis and this was the first time we had ever heard the words ‘Cystic Fibrosis’.

At two weeks old, we received the heel prick test results, which confirmed Skyla did in fact have CF. That day is a day I will never forget as long as I live. I clearly remember handing the phone to my mum: I couldn’t or wouldn’t believe the nurse on the phone. I remember saying over-and-over, “But she’s perfect – look at her”. I was the first person to make that statement about our gorgeous baby, yet – almost six years later – if I tell people she has CF I get the same response that I first made.

– Rachael
Cystic Fibrosis Fun Run

Wanting to bring more resources to Townsville to help the 30 children being treated for CF in Townsville Hospital, I started the Cystic Fibrosis Charity Fun Run – 65kms For Cystic Fibrosis Townsville, 65kms is shared by four or more people (16.25kms per person). There will be teams hitting the treadmills at The Zoo Health and Fitness this weekend, Sunday 21st of June to raise awareness and funds for our target of $20,000 for local kids.

Cystic Fibrosis Townsville

This year, as part of our fundraising and as a celebration for all of the kilometres ran, a charity auction and masquerade ball will be held on Friday, June 26 at The Banquet Centre.  The Ball is sure to be a night of fun, mystery & entertainment and come dressed for the occasion, complete with a mask of course!

This year, all funds raised will stay here in Townsville.

As time has gone by, I have realised what is truly needed here in our community for these children.  In the last 12 months Skyla has spent a lot more time in hospital both here in Townsville and in Brisbane and this has made me realise how many wonderful things they have down south that we just don’t have access to up here.

In conjunction with Cystic Fibrosis Queensland, and the Townsville hospital, I will be using all funds raised to improve our children’s time away from home. Whether it’s new physiotherapy equipment or entertainment for the kids during their long stays in hospital, I have so many wonderful ideas and hope I can raise as much money as possible to enable all this to come to fruition. Help me raise $20,000 to help local kids with CF. You can click here to make a donation 

Click here to buy yourself a ticket to the ball or get together a group of 10.

Or, alternatively, put together a team and join me on the 21st running 65kms. Follow here

Please help me raise $20,000 to help local kids with CF”

 – Rachael

This article was submitted to Townsville Women by Rachael and this is her story in her own words.
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